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ARTFL

University of North Carolina at Chapel Hill


Description

This study aims to build a research network and registry for persons with Frontotemporal Lobar Degeneration (FTLD or FTD) in order to aid in future clinical trials.


Keywords:

Behavior, Brain/Head, Genetics, Dementia, Neurological Disorders


Category:

Registry

Qualifications

 


Age
18 - 85 years


Gender
Any


Study Population

Adults with a diagnosis or family history of Frontotemporal Lobar Degeneration


Investigator

Daniel Kaufer
Assoc Professor with tenure
Neurology

For questions, contact:

Jessica Ferrall
jferrall@neurology.unc.edu
(919) 962-8852


Recruitment Period End

January 31, 2020

Location

Primary Location
UNC Hospitals Neurology Clinic
Burnett-Womack Building, 160 Dental Cir, Chapel Hill, NC 27514, USA
Secondary Location
Clinical & Translational Research Center
194 Finley Golf Course Rd Suite 200, Chapel Hill, NC 27517, USA

Study Qualifications

Gender Any

Age Range 18 - 85 years

Participant qualification(s) Diagnosis or family history of a Frontotemporal Lobar Degeneration syndrome, Have a reliable study partner who can provide an independent evaluation

Not eligible if: Known presence of structural brain lesion that could explain FTD-like symptoms, Known presence of an Alzheimer's Disease causing mutation

Number of Visits

    » 2 In person visit(s)

    1 Screening, 1 Clinic, with possible 1 year Clinic Followup

    » 0 Remote visit(s)

Participation Period

1-2 days

Compensation

$100 stipend as well as need-based financial assistance available for travel compensation

By clicking I am interested, your contact information will be sent to the researcher/study coordinator for this study. The coordinator will respond by email with additional information on how to proceed.